Until now, there has been no form of advance directive that put these questions squarely in front of the person with early dementia. Last July, I published such a form.
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This is the story of the journey from bulletproof dad to a man crippled by disease, the transformation of relationships, and what assisted dying looks and feels like from the inside.
“Six months … inexorably culminating in a slow death by starvation … I cannot … deny someone a choice that I myself would want … under the same grim circumstances.” — Dr. Joshua Pagano
“When I started medical school … one of the things I needed to learn, but didn’t, was how to talk to people about death and dying.” — Junaid Nabi, MD, MPH
What if the laws intended to give people more control over dying actually fail many of those who need them most?
“Several years ago, my husband and three children and I were driving through rural Pennsylvania on a family trip and saw a billboard that asked, somewhat ominously: ‘Is Your Hospice Letting You Down?'” — Theresa Brown
No One Dies Alone is a compassionate volunteer program that ensures people with no one else available have someone by their side at the end of life, bringing dignity and comfort through human presence.
“Now that I realize that I’m on my way to the final exit, I feel that there is very much to explore here … the world feels completely different when we realize that fact.” — Wally Klatch
Decisions at the end of life reach beyond an individual’s medical condition and involve in-depth consideration of how each person defines quality.
Consider the importance of focusing on your loved one’s perspective during their final moments, rather than being consumed by your own grief and emotions.
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