(The author is a former professor of sociology at the University of California, Davis. Her book Passing On: What’s Fair in Family Inheritance? explores the ethical and practical challenges of deciding how to distribute our worldly goods when we die – Jay Niver, editor)
Word has it that elders’ suicides are out of control. Google “suicide in the elderly,” and you’ll find it described as a “quiet epidemic,” a “needless tragedy,” a “pressing public health concern.” You’ll learn that “older Americans are quietly killing themselves” in nursing homes and assisted-living centers. That, compared with the suicide rate in the U.S. at all ages, the rate for those aged 85 and older is “alarmingly high.”
But is it? No. According to the National Vital Statistics Reports, Deaths in 2018 (the most recent available data), only 1,248 of the 880,280 women and men ages 85 and over who died that year were suicides. About twice that number were reported for 75-to-84 year-olds.
True, the suicide rate at age 85 and over, 19.1 per 100,000 population, is higher than average, especially for men. But that’s only because the denominator – the size of the population that age – is small.
Suicides are undercounted, of course – perhaps more so among the elderly, where many are likely attributed to pre-existing medical conditions. Death-with-dignity laws that permit some terminally ill persons to receive medical aid in dying declare the cause of death to be the fatal illness. The same is true for someone who foregoes life-prolonging medical treatments or self-administers a lethal dose of morphine in hospice care. Some alcohol- and drug-related deaths and accidents may mask intent.
But even if we multiply reported suicides by, say, 10, that’s still only 12,480 in the population aged 85 and over in 2018. Compared with the almost 900,000 this age who died that year, this is a mere blip.
Given – as Atul Gawande writes in Being Mortal: Medicine and What Matters in the End –that most elders will spend significant periods “too reduced and debilitated to live independently,” why don’t many more end their own lives? We can postulate many reasons, but one is surely the outright denial of our rights as seniors to end our lives on our own terms. The media, healthcare institutions and legislators, buttressed by social attitudes, are all complicit.
In April 2019, PBS NewsHour ran a story called Lethal Plans: When Seniors Turn to Suicide in Long-Term Care. “Hundreds of suicides by older adults each year – nearly one per day – are related to long-term care,” we’re told. “Thousands more people may be at risk in those settings, where up to a third of residents report suicidal thoughts.”
An industry spokesperson responds that suicides are rare. He’s right about that. But, he adds, such deaths are “horrifically tragic” when they do occur. Most facilities offer “a very supervised environment,” and those who receive Medicare or Medicaid funding are required to monitor patients for suicidal behavior.
Let’s consider what we’re being told here: “Nearly one” suicide per day? Surely that’s very low, even if we multiply by 10. “Thousands more may be at risk.” A systematic review of studies of long-term care facilities did find that active or passive suicidal thoughts are common among residents – from 5 to 33 percent in the past month across the facilities with comparable data. But suicidal thoughts can mean many things: a definite plan, a wish, a threat, a fantasy? How do we interpret such findings?
The psychiatric literature tends to view “suicidal ideation” almost by definition as a sign of mental illness associated with clinical conditions such as depression, schizophrenia, impulsivity, cognitive impairment, and even “maladaptive emotion regulation.” Less-clinical approaches identify factors such as social isolation, loneliness, and functional decline.
Largely missing from this discourse, however – except when adorned with quotation marks – is the concept of rational suicide as a thoughtful decision made in the context (or anticipation) of a set of circumstances that a person is not willing to tolerate. Not a mental illness or an idle impulse – in other words, a considered choice. Yet, the overriding institutional response to the “risk” of suicide is clear: All seniors who express or even harbor such thoughts must be rescued, treated, protected, stopped.
Lethal Plans assures us that most facilities offer a “very supervised environment,” but this can easily morph into policing in the name of protection. State inspectors blame nursing homes for failing to heed suicidal warning signs or for evicting patients who tried to kill themselves, we’re told, and assisted-living centers that promote independence and autonomy can miss warning signs of suicide risk.
We’re warned that most seniors who choose to end their lives don’t talk about it in advance. Of course they don’t. Spill the beans, and psychiatrists, social workers, family members, legal proxies, and other gatekeepers may be summoned; security staff alerted; rooms searched; rights trampled. “If suicide is a concern,” an addendum to the PBS program advises, “restrict access to lethal means, including weapons, medications, chemicals, cords and plastic bags. Ensure that windows, stairwells and exits are secure.” This sounds like policing to me.
Full disclosure: I live happily in a light-filled studio apartment on the 15th floor of a nonprofit senior residential community. Most of us are in “independent living,” but many will move to assisted living, memory care, or skilled nursing over time. Our management supports voluntarily stopping of eating and drinking (VSED) as well as medical aid in dying (MAiD) for those who are eligible under California’s End of Life Option Act. However, residents exercising these options must bring in medical providers, caregivers, and companions from outside.
Other than these two options, residents are told that taking matters into our own hands is unacceptable.
“If staff were to become aware of a resident contemplating this scenario and trying to harm themselves,” a memo explains, “they should … refer the resident to appropriate interventions, such as spiritual care and psychological care. Residents trying to follow the Final Exit Network’s guidance on methods of self-deliverance or do-it-yourself ways to end your life pose a risk to themselves, other residents and our staff.”
It’s difficult to understand how preventing people of advanced age from ending their lives safely when they are “ready to go” poses risks to others. Who defines “a good life” or “a good death” or even “good care,” if not ourselves? We need to normalize the discussion about end-of-life options to encompass informed and self-managed exits as legitimate personal choices.
Health systems and lifetime care communities that support VSED and MAiD could adopt comparable guidelines and facilities for safe and comfortable self-deliverance. Just knowing that this option is possible, whether or not one actually exercises it, can be a comfort. It certainly is for me.
I hope that I can make my final exit here in my studio. I will be diligent about protecting the staff and other residents from exposure to lethal substances or the aftermath of a peaceful death. I will try to make clear that my departure in no way reflects on the quality of care or the warmth and congeniality of the community.
What it will reflect is the determination to end my life on good terms, while I’m still mentally and physically capable of doing so. Because I’m approaching age 85, I’ll be adding to the “epidemic” of elder suicides. It won’t be self-harm, however. And it won’t be anyone’s fault. Quite the contrary: It will be a simple, self-affirming declaration that I don’t want to ruin a good life by waiting too long.
I love your thoughts on this. I am only 72 but have some health issues. My main concern is that I NEVER want to be placed in a nursing home. I never want to have to depend on strangers for me personal care. I hate the word “suicide”. I just want to have control over my own end. And I don’t think that’s wrong. I took my Mom through the last phases of her life and it was heartbreaking to witness. Once I’m not able to read, make art, tend to my own personal hygiene, I want to be done.
Thankyou very much. Just let me decide.
Thank you Ms. Dixon-Mueller for a well written piece. I live in the independent unit of a senior living facility and my wife was in the assisted living unit until she died last December of Parkinson`s and Covid-19. My experience here is that residents and staff are leery about the subject of suicide. In February of 2020 I gave a talk about the status of the Right-to-Die movement which was sparsely attended for I think two reasons; 1) the staff didn`t list in on the calendar of events for that week and 2) the natural tendency to avoid talk about death & dying that I see in many of the residents here.
Thanks again.
Bernie Klein, Saline MI
My 94 year old dad chose to end his life by refusing food and water. His terms, it was deemed a natural death with heart complications. I hope I have the strength of constitution to do the same.
I agree with you Julie, I also hate the word “suicide’. I think it should be referred to as “ending one’s life” or “life ending measures”…..etc.
Especially when they’re considering a peaceful death with FEN or have access to MAID. Suicide sounds so raw and harsh for someone who is dealing with disease or total life altering conditions.
The only way to die with any dignity….is to do it yourself
As someone who has spent the last 40 years suffering from the effects of having had a minor affliction (testicular cancer – smalled the doctor had ever treated), but having the surgery done in a facility whose owner created i( the facility)t to dispense enormous amounts of radiation to all – regardless of medical need. It was before the concept of (watchful waiting) truly emerged and I suffered through 28 consecutive days of of lead plate/cobalt radiation that essential ruined my life sexually, emotionally and practically. Much of this was because I was not given a chance to express my feelings, and all that entered this horror chamber suffered the same fate. Many is the times I have said, I don’t want to be here because the simple pleasures of life had been “Burnt” out of me. I attempted “suicide” with an overdose of medication, but it failed and I have been branded as “suicidal” with all the restrictions, attitudes and expectations that come with it. It is a horrible word and designed to be just that – horrible. Years later I am still that “suicidal person” in the eyes of the world even though I have no desire to recreate what occurred. Society and the medical professional have no room for forgiveness, and so I have ben locked in that cage to this day.
Suicide is defined as the intentional ending of one’s life. Isn’t that what we are talking about? What’s wrong with the word? It’s as a woman saying she hates the word “abortion.” She just wants to discontinue a fetal gestation process in her uterus. Come on folks! Keep your focus on the principle. Call it what it is and stick to the principle. Formulating PC language to sanitize our beliefs is conter-productive.
Someday the statistics will be reported in different categories.
For example, when terminally-ill patients
decide to use one of the right-to-die laws,
how much longer will these deaths be recorded as “suicide”?
My guess is that 5-10% of all deaths now reported as “suicide”
would better be recorded as “voluntary death”.
Here are four basic ways to separate
IRRATIONAL SUICIDE
from VOLUNTARY DEATH:
https://s3.amazonaws.com/aws-website-jamesleonardpark—freelibrary-3puxk/CY-IS-VD.html
There are underlying motivations for suicide, but I’m not sure about the value of classifying them. Is one motivation reason somehow more “valid” than another? I don’t take suicide lightly but I don’t like government sitting in judgement of people when they are not harming others. Yes, the survivors do suffer and are harmed, which is why I take the subject very seriously. But it’s not that’s not the kind of harm that should be legislated about. In a sense, every suicide involves unbearable suffering.
I just love your straight forward writing on this topic! Thank you so much for inviting others to consider that ending one’s own life is surely the most basic of human rights.
I believe that part of the attitude about managing one’s own departure stems from greed. Nursing homes want our financial support. Hospitals want our financial support. The medical professionals and pharmaceuticals want support. That’s fine and dandy. But if a person doesn’t want to be institutionalized and they can make a decision before they lose the ability to decide their own fate, let them do it. What good is life when all of the pleasures and freedoms are gone? No thanks. I just wish I knew how to do it with medications. I’ll sign anything to release others from responsibility and take it all on myself. I’m sorry for all of the rest of you who are also suffering in some way.