End-of-life conversations can ease suffering for families, not just patients. You can start these conversations simply, like saying, “I need to think about the future. Can you help me?”
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On Saturday, February 18, 2023, when the Carter Center announced that former President Jimmy Carter would be receiving hospice care at home, I was both saddened by what this decision essentially means for the former president, and intrigued by the possibility of having broader discussions about hospice and, more specifically, end-of-life doulas.
The lawsuit does not attack the right of patients to access medical aid in dying, which is the heart of the bill. Rather, it challenges provisions of the law that require providers to inform patients of the availability of medical aid in dying, and to refer those patients to a willing provider if the patient’s primary provider is unable or is unwilling for any reason.
“They made the end of his life horrible and painful and humiliating,” Elaine Greenberg said. “What’s the sense of having a living will if it’s not honored?”
Decisions are often made unilaterally without necessarily considering what the one dying wants or needs. A respectful death involves truly listening to the dying and being open and honest with them and the family.
When sickness and death strike, sometimes guidance from the past offers the clearest path forward.
When done right, hospice offers Medicare beneficiaries an intimate, holistic and vital service. But sometimes pinpointing what constitutes a “good death” is nearly as difficult as determining what makes a good life, and families do not always realize when hospice is failing them.
“We can’t keep up with our waitlist,” Arnoldy says of skyrocketing interest in the program. “The last time we opened up registration, the applicants crashed our system.”
A “good” death is one in which you exert maximum autonomy over your end-of-life journey. Here are some checklists for what needs to be done.
“You have to be well connected within a network of doctors or skilled in researching such matters, and that’s one possible explanation of why well-educated people are disproportionately represented in our findings.”
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