This week’s post includes two vignettes from the book “Extreme Measures: Finding a Better Path to the End of Life” by Dr. Jessica Nutik Zitter, MD, MPH. The book provides an insider’s view of intensive care in America and its impact on how we die. Part 2 will appear next week.
The Minnesota State House of Representatives and Senate are considering companion End-of-Life Option Act bills, and committee hearings have begun. Since Minnesota is the state that will not permit even discussing end-of-life options among those who might want to decide the timing of their deaths with people who are experienced in how to achieve peaceful deaths on our own terms, it seems surprising that right-to-die (RTD) bills have been introduced in its legislature. Nevertheless, opponents of the RTD are amping up their arguments against such legislation.
Prof. Thaddeus Mason Pope explains the newly-effective Nevada advance directive that allows dementia patients to voluntarily stop eating and drinking (VSED) after loss of cognitive capacity, and suggests how it may be used in some other states.
In its new “Dementia Values & Priorities Tool,” Compassion and Choices (C&C) helps people clarify their wishes if they acquire dementia. They offer a satisfactory, though limited, list of dementia-related symptoms (discussed in Part 1). In Part 2, I have identified a few other (or slightly different) symptoms that are important to me in the event that I lose the ability to hasten my own death because of dementia or some unexpected reason, such as a stroke or other event that renders me incapable of carrying out a hastened death. Part 2 concludes an analysis of C&C’s approach to dementia.
Compassion & Choices is trying to do more for those with a dementia diagnosis through a new online “Dementia Values & Priorities Tool.” This post is the first part of an exploration of C&C’s approach to dementia advance planning.
Two weeks ago, I spoke to about twenty people at the regular weekly meeting of the Ethical Society of Austin (Texas). The topic was the seven choices available to a person who becomes afflicted with dementia. I began by asking what, for them, are the characteristics of a “good death.” In about ten minutes, the group offered ideas that suggest a “good death” is a viable option, with some universal characteristics, in spite of some voices to the contrary.
My wife and I had occasion to visit some old friends in California recently. We have known one member of the couple since 1962, when we started college together. We last saw them almost three years ago and have stayed in touch through email and phone calls. David has Parkinson’s Disease (PD), so we knew that we would likely find him in worse shape than the last time we saw him, when his main symptom was a slight tremor in his hands and a shuffling gait when he walked. Lois had given us reports that he was working on therapies to counter the effects of the Parkinson’s.
For the last several years of his wife Jackie’s fatal illness–Frontotemporal Degeneration (FTD)–Lew Lorton was her caregiver and maintained a blog he titled “Just A Guy Muddling Through” about his experiences and thoughts. In this post, he explains some guidelines he developed to help himself through the experience.
When a young child in our life experiences the death of the beloved family pet or a grandparent who has always been there to spoil him/her, we want to give comfort and solace, but how do we do that without painting mythical pictures of angels floating on clouds with harp in hand? Becker’s book, “What happens When We Die?,” helps with that.
Seth Andrews–The Thinking Atheist–discusses death and end-of-life issues from his perspective.
