The concept of the end of life is a period that has evolved over time, with a longer duration due to advancements in health care. The end of life stage is likened to other life course stages, with specific tasks and preparations needed for a smooth transition.
Final Exit Network, a nonprofit, offers end-of-life resources including articles on Exit Guide Services, Advance Directives, personal stories, and Healthcare Representatives, emphasizing the significance of choosing a suitable healthcare representative aligned with one’s wishes for medical decision-making. Membership offers access to forums and events.
What challenges do LGBTQ elders face in finding a trusted individual to discuss their preferences for end-of-life care?
“Your choice of surrogate may be more important than your living will.”
“Even a person who is very, very ill or who has a psychiatric illness or Down syndrome can say ‘Don’t do this to me.'”
A new workbook by a Minneapolis cardiologist offers guidance and reflective prompts to prepare for conversations with loved ones about end-of-life topics.
A woman’s terminal cancer diagnosis leads her to organize farewells with loved ones, ensuring her affairs are in order, resulting in what her family calls a “Good Death.”
“Does the contract allow you to have access to your own doctors? What is the facility’s position on VSED? If you enter hospice, will they commit to providing adequate pain relief? If you live in a state with MAiD, will the facility cooperate?”
“Imagine you are sitting in a serene field with your loved one. The sun is shining and you feel happy. Then imagine later that day, being told that your loved one is ill or worse, the condition is life-limiting. The future of that morning suddenly has a very different outlook, and your priorities understandably change, with a re-prioritization of both your physical and emotional world.”
“Many of the individuals around the bedside barely know each other, and this becomes an environment of misinformation, mistrust, and hidden agendas about substantial financial and estate issues … as ex-wives and ex-husbands, half siblings who never knew each other, long-time same-sex partners (surprise, who knew?), in-laws, out-laws show up at the bedside.” — Dr. Edward T. Creagan, M.D.
