Not everyone gets Precious Time. It is a blessing if we recognize it for what it is, name it, and face it.
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For many families, making hospice work at home means hiring extra help — out of your own pocket.
“Imagine if you’re the caregiver, and that you’re in the house. It’s in the middle of the night, 2 o’clock in the morning, and all of a sudden, your family member has a grand mal seizure.”
Even though I would argue that most deaths aren’t good, we improve the quality of death of the vast majority of people we care for, often substantially. And there isn’t much that’s more satisfying than that.
It just doesn’t make the death good.
It’s time that we revise and refine our cultural lexicon around this emergent end-of-life practice. A medically assisted death definitively warrants a linguistic and conceptual category of its own.
These stories are not for everyone, but they are topics that the author believes shouldn’t remain in the silence.
End-of-life conversations can ease suffering for families, not just patients. You can start these conversations simply, like saying, “I need to think about the future. Can you help me?”
When sickness and death strike, sometimes guidance from the past offers the clearest path forward.
When done right, hospice offers Medicare beneficiaries an intimate, holistic and vital service. But sometimes pinpointing what constitutes a “good death” is nearly as difficult as determining what makes a good life, and families do not always realize when hospice is failing them.
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