As discussed in Part 2, the SPIKES framework is useful to explore the family’s understanding of their loved one’s illness and to share information about medical condition and prognosis. When the purpose of a family meeting is to discuss goals of care, it may be useful to “unpack” care goals using the REMAP framework.
Just as for any medical procedure, conducting a meeting with families of seriously ill patients requires training and practice. Practitioners must develop skills in structuring serious-illness conversations and responding with empathy in emotionally fraught situations.
Timely, well-conducted conversations about goals of care in serious illness are associated with improved outcomes, including care aligned with the ill person’s values, less unwanted (and often expensive) care, improved satisfaction with care, and fewer mental health consequences for patients and families.
Please welcome death and grief educator, author, and public speaker Gail Rubin, aka The Doyenne of Death, as a guest contributor to the blog.
Does “getting your affairs in order” include planning your own funeral? Here’s why it should.
Those of us in the right to die (RTD) movement want to take charge of our own deaths should we be faced with unwanted suffering, either immediately or in the foreseeable future. Some of us who are supported by our families and friends might also like for those same family members and friends to take care of what happens to our bodies after death–a do-it-yourself (DIY) approach to funerals. Others of us won’t care or we may favor a commercial disposition option.
When contemplating what you want when it comes to the disposition of your body, it helps to go in with the understanding that very few services are required by law. Whether you choose a simple cremation with no ceremony, body burial preceded by a conventional funeral, or donating your body to anatomical study, the legal requirements that must be fulfilled at death are so minimal most people are surprised. And this holds true in every state in the country. If you’re willing to clear your mind of what you think you have to do for a funeral, your planning will go more smoothly and more quickly.
