A new workbook by a Minneapolis cardiologist offers guidance and reflective prompts to prepare for conversations with loved ones about end-of-life topics.
“Does the contract allow you to have access to your own doctors? What is the facility’s position on VSED? If you enter hospice, will they commit to providing adequate pain relief? If you live in a state with MAiD, will the facility cooperate?”
“Many of the individuals around the bedside barely know each other, and this becomes an environment of misinformation, mistrust, and hidden agendas about substantial financial and estate issues … as ex-wives and ex-husbands, half siblings who never knew each other, long-time same-sex partners (surprise, who knew?), in-laws, out-laws show up at the bedside.” — Dr. Edward T. Creagan, M.D.
“This committed couple who loved each other through life’s ups and downs were separated when Pat breathed her final breath.”
“Whose wishes for his medical treatment were we to honor? Those of my father back when he was a healthy, highly functioning geneticist? Or those of the simpler, weakened man my father had become?”
“If these five reasons don’t make a strong enough case for physicians to engage with their patients in advance care planning, here’s one more: it is simply the right thing to do.”
“I have the privilege to learn and hear interesting perspectives, along with all the questions and comments that our community members have, on the topics of death and dying. Here are a few insights I have gleaned from these discussions.”
“There should be a JLMA form: Just Leave Me Alone, for those of us who concede that we’re actually going to die some day and work to keep our end-times as inexpensive and comfortable as possible.”
“One of the most common questions asked by people considering ending their suffering is how to start the conversation with family members and friends.”
“Having a sense of the possibilities in advance is essential to minimize surprises, make specific requests for end-of-life symptom management, and decide the possible paths available to you.”