“You have to be well connected within a network of doctors or skilled in researching such matters, and that’s one possible explanation of why well-educated people are disproportionately represented in our findings.”
Unconscious, Michael lingered for hours. His waiting children had no one to call for advice, but Michael had left instructions for this eventuality. Sobbing, his son Bill lovingly carried out his father’s wishes.
“The rest is up to you,” he finally said, ending the conversation for good. He didn’t have any more guidance, and certainly no more patience to talk about it. I was surprised. To me, it felt slightly irresponsible to leave all these decisions to other people.
Recognizing the importance of psychosocial factors to those considering a hastened death led FEN to more explicitly recognize the importance of psychosocial factors when evaluating an applicant’s medical records. By making psychosocial factors more explicit in our criteria, we honor what truly matters to those who reach out to us.
There are so many ways do die with dignity – we can’t let the word “dignity” be hijacked to the service of just one way of dying.
VSED might not be for everyone, but it is the only chance for some to experience an end to unbearable suffering. Done with careful preparation, medical support, and compassionate caregiving, VSED offers a natural end to life.
In 2019, three community women asked to meet with me about a compelling community education concern. The spouses of these women had all struggled to use the VSED end-of-life option because our county’s only hospital, and associated hospice program, had religious affiliations and, therefore, was unable to support VSED.
After he died, Jean and her sister both looked at one other and said, “That’s how I’m going to die.”
“We reached the goal for patients like me, who aren’t terminal but degenerative, to win this battle, a battle that opens the doors for the other patients who come after me.”
In his mind, Mr. Solution had become the problem, adding to his grief and distress.
